MY BEST ADVICE FOR AN AUTISM DIAGNOSIS!

These lyrics remind me of the fight for recovery while dealing with the struggles and setbacks of Autism. It reminds me to keep the faith, never give up, and to keep pushing forward.

  1. Pay attention to the “children developmental milestone checklist”
  2. Trust your parental instincts! Listen to your gut, if it’s telling you something is wrong!
  3. Be persistent in communicating any and all concerns with your pediatrician!
  4. Take the m-chats online to see if there is concern and further need for an autism evaluation.
  5. Early detection and intervention are key to recovery… so be observant and don’t waste valuable time!
  6. Get in sync with your spouse
  7. Seek help within the autism community. You are not alone!
  8. There are tools and support groups that can help you along this journey. Find them!
  9. Find people that have had success with recovering themselves or their child. It will give you hope.
  10. Research all the information and resources you can find relating to autism , educate yourself, and use your best judgement on what’s right for your child. (find the right diet, supplements, health care providers, schools, therapies, therapists and treatment options that best suit your child.)
  11. There is no exact path to recovery, so pave your own way!
  12. What works for one child, doesn’t necessarily work for another so don’t get discouraged, just try something else!
  13. Remember that the autism spectrum is very wide and each child is unique, so each child on the autism spectrum may require different treatments and therapies.
  14. Get to know your child!
  15. You want to decrease negative behaviors and frustrations while increasing the positive ones by teaching them ways to communicate.
  16. Recognize your child’s challenges and obstacles and provide the right tools to bring out the best child that your child can be
  17. Be your child’s best advocate!
  18. Know your child’s legal rights!
  19. Seek early intervention services! Early intervention is a federally funded program for infants and toddlers with disabilities
  20. Ask for an individualized evaluation plan (iep) to discover what your child’s specific strengths and weaknesses are, so you can put together a plan of action for what therapies you should be focusing on.
  21. Research and choose the right school,therapists, therapies and treatments , that best suit your child,their specific needs, your family, as well as your lifestyle
  22. Write a letter to the school district asking for help, an evaluation, and proper placement for your special needs child!
  23. Put together a team of professionals that best suit your child’s needs!
  24. Make sure all therapists, teachers, caregivers, and family members are all on the same page!
  25. Ask to observe your child’s school and classroom!
  26. Ask for parent training! So important!
  27. Find and make a list of all the positive reinforcers that your child will work for.
  28. Organize your house for therapies
  29. Check out the picture exchange communication system (p.E.C.S.) and make p.E.C.S. Books, charts, schedules, to help your child with communication if they are non verbal. (make 2×2 p.E.C.S. Cards by taking pictures and labeling all of their favorite food, toys, movies, people etc)
  30. Make your home safe proof! Locks and/or alarms on doors, non diet food items out of reach, etc.
  31. Eliminate toxins from your child’s environment.
  32. Go green in your household. (cleaning supplies, detergents,etc.)
  33. Pay attention to what is working or not working, but give it some time!
  34. Don’t get discouraged! Persevere!
  35. Seek biomedical interventions! Their theory is “heal the gut, heal the brain”
  36. Find out what nutrients your child is lacking or not producing enough of and give them the needed supplements.
  37. Get your child healthy from the inside out so that they will respond better to their therapies. Look into the special diets for children on the autism spectrum.
  38. Keep a food/poop/behavior journal
  39. Learn about the benefits of putting your child on a specialized diet!
  40. Learn to read all food labels!
  41. Try to go 100% all natural and 100% organic!
  42. Make lists to organize approved and not approved food, beverages, supplements, so all caregivers will be made aware.
  43. Make a list of foods, additives, and other restrictions from your child’s diet to avoid!
  44. Make list of supplements, doses and make schedules for taking them!
  45. Make list of inventory/shopping list of allowed ingredients and brands you use!
  46. Cook special diet food in bulk then freeze, be prepared for parties with special diet approved cupcakes, pizzas, etc.And also for snacks on the go!
  47. Get everyone that’s involved in your child’s life on the same page!
  48. Eliminate toxins from your child’s environment by going green in your household
  49. Have a family meeting to determine what everyone’s role and responsibilities will be in the recovery of your child. That helps to avoid arguments and blame shifting.
  50. Give time and attention to your other typical children. One on one time is great!
  51. Get your other typical children involved in their siblings recovery!
  52. Make time for yourself so you can feel good about yourself, de-stress, and go back in stronger!
  53. Make time for your spouse! Don’t always make it about your kids. Enjoy each other!
  54. Go out and have some laughs with other couples.
  55. Eliminate toxic people that divert your focus away from what’s important!
  56. Share your journey, raise awareness, and educate others!
  57. Even though there is no known cure for autism… believe your child’s autism signs and symptoms can improve with the right early intervention treatments and therapies, because they can!
  58. Don’t ever give up on your child!
  59. Be patient!
  60. Never be ashamed of an autism diagnosis or your child may be.
  61. There are many well known people suspected or diagnosed on the autism spectrum.
  62. Have hope and believe in your child.
  63. Recognize and appreciate your child’s amazing qualities, special skills and abilities rather than rather than just focusing on their disabilities.
  64. Find their special skill and help them to enhance it.
  65. It’s a joy and a challenge every single day!
  66. Enjoy celebrating and appreciating any and all accomplishments your child makes because they work so hard for those accomplishments!
  67. They will surprise you with their accomplishments that you may have thought was not possible.
  68. Keep a journal of your child’s progress
  69. Stay positive
  70. Defy expectations!